72weeks (17months) post first op and 42weeks (10months) post 2nd op!-

It's boxing day, that means it was Christmas yesterday! My favourite time of year, everyone seems so much more jollier and happier at Christmas, it's nice to see:)
With Christmas in mind I haven't had time to post i feel bad for that, things have been happening and I will update you -
I had physio on the 16th December  it went good and it wasn't what I was expecting really, he gave me 3 excerses to do to help my shouldetblade as apparently the left of sticks out abit, it's to make it flatter. He also said my muscles around it are very weak and stiff so he was massaging them to 'wake' and loosen  them up at abit. It did feel odd but actually nice!!
I also had a letter from the hospital ( explaining what happened in clinic when I saw mr mehta last time) and there was a paragraph that took me by surprise really, he mentioned about the radiology  department having a look at my X-rays and checking for pseudarthrosis andi I was suspected they should do a SPECT CT scan. Well Monday we had a call from my surgeons secretary and guess what? They want to do the scan its looking like it will be done next year and they are also are planning on doing my intercostal block after the scan so I could be waiting a long long time yet. I'm not sure what will happen after the scan or how we will get the result or anything like I said its take me by surprise!
Jemma's operation is fast approaching its in 10days! We go to see mr Mehta next week to go through everything. I'm more nervous about her operation than I was my own!
I'll update you more next week:)
Kirsty xxxxx

70 weeks(16months) post 1st operation and 40 weeks (9months) post the 2nd operation-

Things here have been very quiet with me the last 2 weeks as nothing has really happened. I had laser therapy on my back on the 4th December, it does seem to help, I mean I also do feel less stiff when I have it, it apparently was my last course of treatment so I have to wait to see my pain management doctor again too see what else he can do, I have the appointment to see him, but it's no untill late march next year, so I am stuck with nothing untill then, oh apart from a TENs unit th pm nurse gave me to try, but it is not doing anything apart from heating my back up ( in and out!!) I can't feel any little eletrical pulses PE everyone else can, there seems to be nothing, it's on the highest setting as well!!

This week started off with me having an appointment with my GP, it was to check how I'm getting on with the anti depressants and for my blood test results. Well there has been a big sickness bug going around my area for a while and she caught it, as well as 1 other doctor and 2 nurses, meaning she phone in sick, no appointment for me yippie!! Lol. 

On Thursday Jem had her pre op which was eventful, everything was going well untill they came to do a blood test and then bam! Jemmas veins decide they don't want to play. It took3 hours 3 nurses, 1 stressed out doctor and the anethatist do find a vein, they all had preveiously taken it in turns separately but it was none successful, poor Jem had7/8 needles poked in her in total, so she wasn't Impressed. Another things we found out was Jemma is having her operation on the 6th of Jen and not the 7thmeaning it has been brought forward a day. Se is being admitted on the 5th though to finsh off the tests etc.

Tomorrow I am seeing my CPN ( oh the fun!) I am Hoping she is still pleased with my progress as I am trying, but we shall see! I am also starting physio on Tuesday (16th) at ROH, we had a phone call Friday asking ifi could make that time and date, let's hope this will help..

Kirsty xxxx

68weeks(16months) post 1st op and 38weeks(9months) post 2nd op-

Wow well I cannot believe around a year ago I started writing this blog! I did not expect the reaction I have gotten off it all , to be honest, I started this blog of too have a place where I could express my feelings and thoughts about my back and life. is so nice to have people that have actually benefitted from me writing about my journey! so thankyou to you all:)
So to kick off last week was a little bit of a shocker, my sister had a phone call from the hospital to say her operation on her Scheuermanns will be in early January 2015 (7th or the 8th) she is terrified but her back is hurting her more and more so she knows its going to be worth it. She has another pre-op date, which is on the 10th of December, she is still needle phobic so we will see how it all plan outs haha!

well to start this week off I saw my cpn, she is impressed so far with what im doing and I have to carry on doing what im doing, im still waiting for my appointment to see a dietician but she is now sending a referral for talking therapy (CBT!) I don't really like talking to people especially people I don't know so I really don't know how this is going to work, I see her again in like 2 weeks, she is trying to stop it from getting any worse. but she can only do so much on her own.
on Tuesday I saw my GP again, I think she likes to keep a close on everything. My ECG I had last week came back good which was good to hear! on the down side she weighed me and ive lost more weight! im now 42kg so ive lost around 1kg/1.5kg in 2/3weeks! she didn't seem very happy at all so she is chasing up my referral for the dietician. My cpn has also requested medication AGAIN! so even though my gp didn't really want to, ive now started citalopram 10mg, I have to take it at night so the side effects are less, my GP or anyone doesn't know how its going to react to my body, well so far I feel so sick, have a head ache and im constantly tired! I am also having to have to have my blood test retaken (perfect!) just so she can keep an eye on it I guess. Ugh I hate blood tests.

here os a photo of my scars I took the other day, its looking so nice and faint!, I mean you can barely see it, which is a shame for me as I love it! it shows what I've been through and how far I've come. this past few days though ive been having bad pain in my lower back, its feels like a lot of pressure is there, im hoping it will go on its own.
Kirsty:) xxxxx

66weeks (15months) post 1st op and 36weeks (8months) post 2nd op-

Well I know this hasn't got a lot to do with my back but in ways in kind of does... I went to see my CPN last Monday and she said I'm doing ok with my food diary and at least I'm trying with it, she wants me to carry on doing my food diary but now adding how I feel etc and if it's a bad day (not a lot of food) she has given me too other sheets of paper to fill in, i find it really hard to express my emotions, even writing them down, some parts of me thinks if people know how I feel they will get into all my business which is something I do not want. I am also allowed to weight myself only once every 3 weeks mind ou but I guess that's ok, I have been given some stuff to read on anorexia
And anxiety so I have Ben having a look through them, she said all the stuff I'm doing at hope (food diary, thoughts and everything) are so she can get more of an understanding so she can reffer me on to secondary care.
Also this week I have seen my GP, I seem to be seeing her every few weeks. I have been asking her about anti depressants again as my anxiety is quite bad but she is adamant that I am not taking them, she keeps saying that there will be too many side affects with my weight and build which is frustrating. She even came out with that they have in the past gave children antidepressants so I just don't get why I cannot have any then? My CPN really wants me to take them as she feels I'll benefit from them a lot.

Nothing really has happened with my back over the last couple ot weeks, I havent been up to much but my shoulder blade is hurting a lot still:/ i really honestly don't know what to do. I just hope physio and everything would hurry up so I can see if they help! I also really hope the next time I see mr mehta I came rise my horse and everything again, I am really missing it ALOT, my horse isn't young now and he seems to be aging very quickly, he has athritis in all 4 legs which isn't good at at all!
Kirsty xxxx

64 weeks(15months) post 1st op and 34weeks post2nd op-

well where do I begin? I saw Mr Mehta on Monday so I explained to him about everything that's going on and the pains I was getting the outcome of it all really is a mixture. I am having this injection thing in where my ribcage is because of pain, I am not looking forward to it one bit I hate needles, I'm super needle phobic so I really don't know how this will plan out, I was hoping there was something else that could have been done like the registrar said the last time we went but there isn't. Apparently rib resection is mainly used for people with scoliosis and the part that us deformed is one of the main ribs. I honestly don't know if I'm upset about this, of course I am really, it's lumpy and vile, I'm 19 and I cannot even wear a bra properly because of he pain and awkwardness of it., my ribcage sticks out a lot to me and it bothers me, ok I know I wouldn't have been 100% perfect but I wasn't expecting this before my operation at all. I hate kyphoisis a lot of the times, especially times like this. I don't like to be negative, I really don't but to Me it's quite embarrassing, not being able to wear a bra for more than an hour with it hurting and bothering a lot, even then I can't have anything with wire or anything like that, oh no. I am so thankful for my fusion and I love my new back it just seems to be only me that's having some type of problems.
I am also starting physio again, but this time I think it's at ROH, I am still having aweird psin where max knocked me over so I hope that will help. Other than that mr m is getting my ct scan re check to see if there is a small possibility of them missing anything,

I also saw my GP on Tuesday for a check up. Well I didnt have good news from that either, I weight 45kg 2/3 weeks ago and I managed to loose 2 kg meaning I'm 43kg now, so I am going to see a dietition. My GP is also wanting to discuss weight gain drinks/ supplement stuff. The thought of putting weight on is scary, I don't want to. I mean I'm happy aren't I? I don't want to be over weight, or chubby:( I once had fat rolls, I never ever want them again! My rods and screws are starting to become prominant, we found that out when we saw mr Mehta, even he is now saying putting on weight may help. Like I've stated before I dont like letting everyone down or anything but it's really hard and I wish some people would see it'
I am seeing my CPN tomorrow, so there will be a update on that after its happened.
Kirsty xxxxxx

63weeks(14months) post 1st op and 33weeks(7months) post the 2nd-

Last Monday I saw my CPN for the very first time, I was so nervous, I didn't want her to think what I was saying was stupid, the appointment lasted well over an hour so she could get an idea of why I was there,I know have to write a food diary untill I see her next and write a list of foods I will and won't eat, that's a challenge in its self as there isn't many foods I can think of that I can't actually say I like haha! I also had to go see a gp Wednesday, the one I saw the,at time had no appointments, and the CPN wanted me to go on some anti depressents as they could help, but this GP wouldn't give me anything, I couldn't eve have pain relief for my back that has been hurting a bit lately! Apparently they would all knock me about to much and she wasn't happy giving them to me with my weight, she even had a fit when I told her I was taking 2paracetamol 4 times a day for my back, apparently this is an overdose? I thankfully manage to talk myself out of getting admitted to hospital for a check up because of it!
This week has been quite boring really, I haven't done much other than try and sort jimbo out, it's still very hard and I get tired. The CPN rang on Tuesday to check if I was ok, which I thought was lovely! It was a suprize when I answered the phone and she was talking .

 I am taking paracetamol daily now for the pain near my hooks and my pain in my lower back but it doesn't do much if at all anything. I see mr Mehta again next Monday so we will hopefully get to find out what's going on with my back, I hope nothing bad is wrong. I also see my GP Tuesday, so f all goes to plan I can try and get something to help, hopefully of course!

In other news, jimbo isn't very well, he has now got athritis in all of his 4 legs, the back ones aren't as bad as his front but it is still there, we have to keep him as mobile as possible as it would help. What is worrying the most is because jimbo is drinking tons and  tons of water which isn't like him at all, jim hardly drinks anything in his Stanley but he has been drinking loads. He also isn't eating his tea, he will eat hay and grass but that's it so the vet was to test his bold to check his liver and kidney are ok. I really hope they are, but if it is apparently in the early stages there Is medications
 That can try and help it but there is no gaurentee it will work. :(
Kirsty sxxxxxx

61weeks(14months) post 1st op and 31weeks(7months) post second op-

This week started with my twin having her last pre op assessment ready for her operation, which was spinal cord monitoring, it wa weird to see Jems perspective of the test, I found it funny but odd and laughed the whole was through it but Jem on the other hand said it as vile and painful! Anyway, it was done within 15minutes. I had my laser treatment on Thursday's, it was perfect timing really as my thigh was giving me some trouble, not pain, but it was very sensitive, the laser is actually helping that part of my body, I'm not too sure on anything else, it's weird, it's kind of like i don't really remember what it felt like before.
I went really faint again on Wednesday, I'm trying to eat more and I'm eating more than I did but it is still happening? Apparently even with the iron and vitamin D I'm still looking very pale:'( , if this keeps going on I'll have to back to my GP as I don't reckon it's normal and I did ask him if there was anything I could take for my lower back pain but he just stated he would sort that when everything else is sorted!
I managed to fall down the stairs yesterday landing on my back! I should really have clumsy wrote across my fore head, better still, i will invest in some bubble wrap. I had the same burning pain going up my back like I did when max knocked me over, and I'm hurting and aching this morning but silly me still decided to go for a walk out on my pony, everything was going great, untill the way back to the yard that is, this kid came bombing past on a scooter, those ones that were cool when you was 7 well he was like 14 (not kidding!) well jimbo spooked and went cantering sidewards bucking down this very busy small lane we was riding on! The kid didn't even have the politeness to say sorry he just carried on bombing past Jem nd my friend gabby. I had to get off jim as he was prettified, Gabby kindly swapped horses with me so I rode her horse back. my back is super sore now from that, so I'll stock up on the paracetamol tonight! Since max knocked me over I've lost a lot of my confidence with the horses, I now have this panicking feeling whenever I go in the field to get them, I just don't want to snap my rods, I think it's also because I was comfortable in cantering, galloping jumping and everything before my operation and I haven't managed to get to it yet,I'm still just walking, which ok I'd rather be able to walk on my ponies than do nothing!!!
Kirsty xxxxx